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A MyLupusTeam Member asked a question 💭
Munford, AL

I take plaquenil and have weaned off Prednisone and am flaring...what could I do to avoid steroids?

June 14, 2016
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A MyLupusTeam Member

I am on cellcept and s low dose of prednisone.Some of my lupie friends are on plaquinel but I had bad side effects with my eyes and had to discontinue that drug. Some of my Lupie friends are having good luck with Benlysta.

June 14, 2016
A MyLupusTeam Member

I am on CellCept... 1500...mg. a day... I still have flare-ups I have a very aggressive form of lupus but I am off of Prednisone right now and I'm off of benlysta also because I just did a round of rituxan... Which I had an allergic reaction to but they were able to control that... Unfortunately you might have to take a 12 Day pack of Prednisone or something like that... I don't know if this helps or not but I hope it will give you some ideas... Have a blessed day...

June 14, 2016
A MyLupusTeam Member

Usually if the flare is bad enough, the only thing they can do is give you prednisone. I wouldn't suffer through the pain. Those little antibodies may do some serious damage.

June 14, 2016
A MyLupusTeam Member

I start on a high dose of Prednisone and taper back off over 2 weeks

June 14, 2016
A MyLupusTeam Member

I tried that also and flared so I had no choice. They tried me on a very low dose and I felt better so I can't get off them unless there's something else out there! Please let me know as well!

June 15, 2016

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