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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
What Is An Alternative To Steroids To Get Through A Flare?
A MyLupusTeam Member asked a question 💭

I take plaquenil and have weaned off Prednisone and am flaring...what could I do to avoid steroids?

posted June 14, 2016
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A MyLupusTeam Member

I am on cellcept and s low dose of prednisone.Some of my lupie friends are on plaquinel but I had bad side effects with my eyes and had to discontinue that drug. Some of my Lupie friends are having good luck with Benlysta.

posted June 14, 2016
A MyLupusTeam Member

I am on CellCept... 1500...mg. a day... I still have flare-ups I have a very aggressive form of lupus but I am off of Prednisone right now and I'm off of benlysta also because I just did a round of rituxan... Which I had an allergic reaction to but they were able to control that... Unfortunately you might have to take a 12 Day pack of Prednisone or something like that... I don't know if this helps or not but I hope it will give you some ideas... Have a blessed day...

posted June 14, 2016
A MyLupusTeam Member

Usually if the flare is bad enough, the only thing they can do is give you prednisone. I wouldn't suffer through the pain. Those little antibodies may do some serious damage.

posted June 14, 2016
A MyLupusTeam Member

I start on a high dose of Prednisone and taper back off over 2 weeks

posted June 14, 2016
A MyLupusTeam Member

I been in cell cept and currently taking cyclosporine. I use an injectable called acthar gel.

posted June 14, 2016

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