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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Acthar Gel Injections??
A MyLupusTeam Member asked a question 💭

Has anyone been prescribed Acthar Gel Injections for Lupus Nephritis?? I'm having horrible side effects on Prednisone and my Nephrologist suggested Acthar as a non-steroid alternative. I'm having trouble getting my insurance company to approve it, but still hopeful that I can obtain it and get some relief. I know it's a very expensive drug, but has anyone had any good/bad experiences with it??

posted September 29, 2016
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A MyLupusTeam Member

I've just done my 4th injection. 2x wk 1 mL. No noticeable difference as yet. My ophthalmologist is actually who prescribed for my anterior scleritis but I'm hoping to get a two-fer and it also help my Lupus. The only drug that has done anything for me so far is prednisone at high dosages. I've tried Methotrexate, hydroxychloroquine and azathioprine. I was actually handling the azathioprine fine until I got covid and then every time I tried to get back with my dosage, I would be in the bathroom all day with vomiting and diarrhea. Makes no sense to me. Anyways, the company has an awesome patient support and so far, I haven't had to pay anything, but they are still trying to get my insurance to cover. If that happens, they sent me a co-pay card to use for my cost after insurance. If they don't approve, they say I won't have to pay for a calendar year. Fingers crossed.

posted November 13, 2022

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