I haven't been diagnosed with lupus yet although it was mentioned by my rhumatologist as a possibility. Has anyone had similar symptoms or a story similar.
Here are my symptoms so far; (some may be related some may not but this is what I think is related)
3 years ago I kept getting urine infections. Docs kept putting me on antibiotics but they never investigated into why I kept getting them
A year later I was told from bloods I was anemic and my red blood count was low. I was sleeping all the time… read more
I hope you get a diagnosis soon. It is difficult. It was actually a Psychiatrist that suspected that I have lupus and he ordered the tests. He was correct. Use a good 45 dog sunscreen, if you have to be in the sun. There are so many symptoms with lupus and everyone is different. If the rash on your face is a butterfly rash then that is a big indicator toward lupus. You may want to see a different doctor too. Be proactive and ask lots of specific questions at your doctor visits. Don't let them be vague. Keep a daily journal of what you eat, activities and your symptoms for at least a month and show this to your doctor. I know it's frustrating, especially when you're not getting any answers or targeted solutions. Be gentle with yourself. There are also many natural remedies that you may want to investigate. There is a lupus section in many natural health reference books - Prescriptives for Natural Health, Nutritional Healing, etc. Good luck. I hope you find relief soon.
I was into that kind of "not sure diagnoses"..
The first time I was complaining about is I have difficulty in peeing so my physician gave me antibiotics to take.. Then I visited her again and I am complaining with diffirent symptoms and she told me it could be thyroid so I need to do some special bloodworks and test. After a week she called me and discussed to me the result of the tests and she said that I have lupus.
I tried to see diffirent clinics and doctors just to make sure if my physician is correct..and yeah its true..
Make sure you're taking notes of your everyday suffering. It helps for future reference esp when you see specialists doctors. Sometimes it may difficult to recall all that you have experiencing by just thinking...
I didn't have the best pcp either...very similar related story and then some! Sounds like it's time for lab work!
Definitely sounds like lupus to me.... Sorry to say... But do stay out of the sun... It's can make lupus flare up... My symptoms were alot like yours except the utis ....but it can take some time to diagnose... And also avoid UV lighting... Use good sunscreen and cover up... If you do have lupus the sun is your enemy.... Good luck x
Bless your heart you sound like me. My first Rheumatologist appt at Gready in a couple weeks. I feel like I am dying sometimes. Stay strong sometimes it takes some investigating to get a diagnosed.💪💪💪