Im researching Benlysta! If anyone taking Benlysta can share their experience?
Did if work for you?
Side effects
Does this treatment cause weight gain? etc.
Thank you in advance
I had to go get my wedding ring cut off because my finger was hurting and no matter what I tried I couldn't get it off. Just FYI if anyone is in the same boat go to your fire station they have the tools to do it and then when I can I can get it fixed.
I'm back on benlysta, i got the infusion yesterday evening and im glad im back on it. I believe it truly helped me and I will never stop it again because once I stopped the infusion I was in such bad shape, in pain and fingers swelling up. I have not gained weight from the Benlysta, only the prednisone seems to get me bloated. Its definitely worth a try. Blessings to you☺
Last Wednesday I'd my 3rd infusion of Benlysta on Thursday when I awoken my left side of my face was swollen also my lip on the same side felt numb like after you've anesthesia from dental work. I looked up the side effects then called my doctors office which the nurse said yes it was a side effect no more Benlysta for me .
I have a infusion once a mth of benlysta. It does help with the pain. It takes 3-4 times before you really feel the difference well that was me. Everyone is different. Yes it can cause weight gain. I think that is with anything that helps with lupus though. Hope this helps if I can answer anymore questions feel free to ask. 💜💜