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Four Books About Lupus You Should Read

Posted on August 08, 2020

Thousands of members of MyLupusTeam connect with one another and read each other's stories to gain perspective and validation about living with lupus. Another way to discover how to live better with lupus is through books written by people who have this condition. We combed through member book recommendations and collected a list of the most popular.

1. Lupus: The Battle Within: A Woman's Most Intimate Life Story by Valerie Horn
This powerful memoir recounts 50 years of living with lupus, from countless childhood doctors' appointments to raising children as a single parent many years later. Valerie Horn opens her life up to us in a story anyone with lupus can relate to.

2. Despite Lupus: How to Live Well with a Chronic Illness by Sara Gorman
A practical how-to guide to living your best life when dealing with lupus. From behavior and diet changes to physiological explanations, this book offers helpful information for managing your health.

3. Unbreak My Heart: A Memoir by Toni Braxton
This memoir by six-time Grammy award winner Toni Braxton discusses her life raising a child with autism while dealing with lupus herself.

4. The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families by Donald E. Thomas Jr.
This Johns Hopkins compendium is a comprehensive guide to lupus, including diagrams and pictures, as well as practical tips and support.

Check out some book recommendations and favorites from members of MyLupusTeam:

"I’m halfway through Sarah Gorman’s book, ‘Despite Lupus’. Great book. Highly recommend it to all of you."

"Did you know that Toni Braxton (who I absolutely LOVE) also has Lupus? She is so super tiny and petite the lupus weight gain and bloating hasn't affected her at all."

"A great resource to learn more is a book called The Lupus Encyclopedia. You can order it online. Tons of info there. Just don't panic - you likely won't experience everything it talks about. Lots of info on the internet too."

What book about lupus do wish you knew about when you were first diagnosed?
Share in the comments below!

A MyLupusTeam Member said:

Dearest Friends
I am writing a book about Lupus from a patient's point of view. I am 3/4 finished and if published. The percentage will go for cost and research!!! Research is my biggest concern… read more

posted 22 days ago

hug

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