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Tomorrow I start injections and was just wondering to anyone who has had them done, were there any major side effects you noticed / what should I expect going in and afterwards?
Mine started out with mild joint pain and rashes too. But that didn't last long. We all have similar and different side effects. Exhaustion, rashes joint pain, I started losing my hair and just don't feel good. And you can't pin point where you don't feel good. Share how you are feeling each day on here. We all can understand how you feel and may have a suggestion that might help. I pray that you have more good days than bad and healing hands of the one above lays on you.
It was after the 2nd treatment. From my chest up, my body got hot and I couldn't breath.
I received my first infusion on Feb 10 and I go back Friday for my second one. They monitored me for a reaction during the first one but nothing happened. I have to go back to Cleveland Clinic and be admitted on Friday for my second infusion due to insurance reasons, but it's really just an IV and it's boring. You sit there for four hours..
I had joint pains in my legs and it only lasted for two days. Unfortunately, I can't take this treatment any more. I had a allergic reaction to it.
@A MyLupusTeam Member I didn't tag you. It was after my 2nd treatment.
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