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A MyLupusTeam Member asked a question 💭
North Plainfield, NJ

Hi everyone I was wondering if anyone is taking Rituximab/Rituxan? My dr wants me to go on this med. If so, did it help? Thank you!

May 30, 2019
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A MyLupusTeam Member

Thank you I appreciate that. I dont have any organ involvement. I just keep getting hit one thing after another. These medicines scare me. How long have you been on prednisone? I take 5 to 10 mg daily. Every time I try to get off the pain gets really bad. My drs said going on that medication should help get off the prednisone. They dont want me taking prednisone because of the long term problems it causes.

May 31, 2019
A MyLupusTeam Member

I got it for 6 months once a month infusions. And my doctor told me after that was done it was pretty much in remission so I just went back on cellcept steriods imuran and etc. I was good two for a few years afterwords. Actually my lupus is really active again so they talking about doing that same treatment again with the rituxan so well see I guess. At the time I only had the kidney problems going on organ wise. If you have anything else u want to ask feel free to ask me I wont hold anything back.

May 31, 2019
A MyLupusTeam Member

I've had it in the past....I got it I've and it made me really sick at first but the my lupus was pretty. Much in remission for a for years after that. I was normal for the most part lol just letting u know I def would do it again if it came down to it.

May 30, 2019
A MyLupusTeam Member

I dont mind at all. There is so much to tell! I will try and put it together tomorrow or Monday. Not having a good day today. How you are having a good day!! Hugs

June 1, 2019
A MyLupusTeam Member

If you dont mind, id love to hear your story?

June 1, 2019

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