I bath in a minimum 70spf broad spectrum even under clothing. Clothing only provides 5spf!

My rash seems to burn and sting. Thanks just trying to learn more but mine is not malar maybe that's why this disease is so confusing😩

Oh boy. Do you feel photosensativity everywhere?

Yes!!! I use sunscreen all day(I especially reapply at peak hours). I also use a parasol(umbrella for the sun with uv protection that actually blocks the sun!) I use my parasol all the time. I got a really cute one.

This disease is definetely confusing. So many different symptoms and we are all a little different.