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I was diagnosed with SLE in 2005 and Sjorgren's syndrome in 2012. My rheumatologist is most concerned about the neutropenia (low neutrophil count) indicated in my bloodwork and he wants me to start on Benlysta. I have no symptoms due to the neutropenia. I thought I was fine on plaquenil, but he added Cellcept and prednisone over the past few months. I have been doing great with no flares, little fatigue and joint pain, but he claims that we need to prevent infections and a flare. It is my… read more
I was on benlysta for almost 2 years to help control my lupus symtoms. It did help me to get better during the time I took it. I had to stop because of side affects.
My body is sensitive to many meds, so have to change often.
I am still taking cellcept along with an antiviral med because the cellcept gave me shingles.
I did find the benlysta to be helpful for the time I needed it.
Hope this helps in your decision.
You are your best advocate when it comes to your body. I have certainly learned that since my diagnosis in 1991.
Benlysta is a strong drug and is usually used when lupus symptoms can not be controlled by other meds.
Good luck with what ever you decide.
Thank you, @A MyLupusTeam Member. I need to do some research. I feel i do perfectly well with plaquenil alone as my lupus is mild compared to that of many others. I feel that my doc is focusing only on my lab results and not my day to day symptoms. My hematologist feels that I don't need prednisone or cellcept, and he is not too concerned with my low wbc unless I have frequent infections. I may need another rheumatologist's opinion.
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