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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do you look at your pee? Kidney condition warning signs

A MyLupusTeam Member asked a question 💭
South Holland, IL

Lupus Fact:
Up to 60% of all people with lupus will develop kidney complications.

BEING AWARE
Kidney disease often presents without obvious symptoms. Because of this, it is important to be on the lookout for the following symptoms:
1. Foamy urine
2. Blood in the urine
3. Dark urine
4. Changes in the frequency of urination
5. Water retention or weight gain throughout the body, including the legs and hands

January 9, 2018
 · 
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Answer Summary

Members shared their personal experiences with lupus-related kidney complications in response to a post listing warning signs to watch for,... Read more

Members shared their personal experiences with lupus-related kidney complications in response to a post listing warning signs to watch for, with many describing symptoms like foamy urine, blood in urine, back pain, frequent urination changes, and edema that led to diagnoses ranging from nephritis to stage 4 and 5 kidney disease. Several members offered practical self-care strategies that have helped them monitor and support their kidney health, including drinking plenty of water throughout the day, adding flaxseed to their diet, limiting caffeine, using at-home urine test strips from pharmacies, and staying vigilant about reporting any changes to their doctors immediately. A recurring theme was the importance of routine monitoring through regular lab work with rheumatologists and nephrologists, staying hydrated, and maintaining hope and faith while navigating the often silent progression of kidney disease that can appear suddenly despite feeling well.

A MyLupusTeam Member

@A MyLupusTeam Member according to the Mayo Clinic...
Normal urine is clear and has a straw-yellow color. While the odor of urine can vary somewhat, in most cases, it does not have a strong smell. With dehydration, the urine is more concentrated and may have a stronger ammonia scent than normal.
Always consult with your doctor if you have any concerns.

January 27, 2018
A MyLupusTeam Member

I was diagnoised with high blood pressure in my kidneys about 3yrs ago. After finding that out, I started researching lupus and kidney disease. I found out that Flaxseed is good for people with lupus and kidney disease. I add a tablespoon of flaxseed to my grits or orange juice everyday and drink plenty of water throughout the day. My kidney doctor started noticing changes in my kidney functions and blood pressure.

May 1, 2018
A MyLupusTeam Member

I'm hurting today. I have pain in lower back, right lung area and right hand fingers, thumb etc. Life is challenging, but am enduring with a smile. I did get my flu shot though and haven't gotten the flu. Remember to always wash your hands, running your hands and between fingers, our immune system is weaker than others.☺

January 26, 2018
A MyLupusTeam Member

I my rheumatologist checks mine with the rest of my lab test. I try to drink more water if I see my urine getting to dark. I drink more now than I was younger. It does a make a difference.

January 10, 2018
A MyLupusTeam Member

I had Kidney Disease before I was diagnosed with Lupus. I get my creatinine checked every Monday because I do in Home IV treatments 6 days a week. It’s important for everyone to drink adequate water, and try to stay away from caffeinated beverages. This is a wonderful place to learn from each other. 💜

January 9, 2018

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