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Has anyone had their lupus cause them to have a total body jerk, where are you just spasm so hard that you find yourself suddenly sitting on the floor? My rheumatologist is very definite about it – there is no such thing as a lupus body jerk. But if Lucas can attack any part of your body, why would there not be a possibility of lupus body jerks? She is also very definite that fever is never accompanied by a flare, but mine often are
It was preceded by a very heavy lupus fog where I… read more
Listen to ladies what u r hving is real lupus symptoms everybody different but neurologist examine wouldn’t hurt either can check blood for spasms disorder or even give you muscle relaxers if ur muscles start spasing out if u feel it coming on but most important you see someone I get the jerk sometimes when dosing off hugs call Doctor in ur area good luck
Thank you so much, Alex Smith, I will order mine today.
Hi Lizl. Body jerks and fevers are both definitely a reality when you have Lupus. Low grade fevers are a symptom and I get them whether I have a flare or not. I have arm and hand jerks often and leg jerks mostly when sleeping. My hand jerks are bothersome when I'm working on my PC. I haven't had a whole body jerk yet, but with Lupus you never know what will come next. I accept all my strange symptoms and I'm not surprised at anything. Praying for you. Hugs and blessings.
Over the 20+ years i have dealt with Lupus, i have found that I know more than my doctor half of the time. You know your body. Listen to it and make the doctor listen to you. I often get fevers with Lupus - in and out of flares. I’d get a second opinion if your doc doesn’t start listening to you. Take care!! ❌⭕️
What’s normal for some may not be normal for you. Get it checked out. Your Rheumie doesn’t sound very educated in Lupus. Fevers are one of the criteria.
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