Does anyone else feel like their entire face and head is on fire, yet their skin is cool to the touch?

It happens to me too!!!
When I have a Lupus flare (extreme fatigue, joint pain more than normal, headache...) then my butterfly rush is becoming so red and all my face seems to be burning. My husband also tells me it’s very very hot, but I have no fever, and generally frozen hands and feet!
Hot or cold water can help...

A big hug to you!!

I hate getting sweaty ALL the time. Anytime I exert myself just a little, like folding laundry or sweeping the floor, I sweat from head to toe. I don't get it. It's not like a hot flash but just profuse sweating. Especially from my head and face. Very embarrassing at work, or I move slowly at work so I don't sweat but then I just look lazy. Anyone else?

@A MyLupusTeam Member That’s what the beginning of my neuropathy was like. For me the issue was I lost density of nerves and sweat glands elsewhere so when my body needs to release heat it happens head and neck. I have to touch my legs to see if they are warm or cool. It’s rarely what I am expecting.
@A MyLupusTeam Member CBD can come from what we know as the marijuana plant. It can contain low levels of THC. CBD can also come from hemp, a related plant. When processed it contains trace to no THC. Both help many on here. You do not have to smoke it, there are gummies and other edibles, oil that you can drop under tongue or apply topically and also topical creams. I wish I could use it but I am very allergic. If your doc thinks it might help and is safe for you why not try?

Mentioned Users

A MyLupus...

A MyLupus...

Sjogren’s can have disorders of autonomic nervous system. It controls things like respiration, heart rate, blood pressure, digestion, temperature regulation,..,
They are known as dysautonomias.