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A MyLupusTeam Member asked a question 💭
Quakertown, PA

I was just diagnosed with osteoporosis of my lumbar spine by dexascan. T score -2.5. My hips show osteopenia at -1.0. I am a little worried about these drugs for osteoporosis as I have read how people fracture when on them or develop AVN of jaw. I already have AVN or both hips and left knee. Thanks a lot.

June 30, 2018
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A MyLupusTeam Member

I am doing some research. I had taken Fosamax about 20 years ago for a short time. My GYN said he would not take that drug because we do not know the half life of it. He recommended Actonel. I stopped taking the drug and later my rheumatologist said he did not want me to take it because we don't know the half life of the drug. I had read on another site that Prolia once stopped was causing fractures in the vertebra. It just does not seem right to take an injection twice a year for your bones.
Hoping more will come in on the conversation.
thanks a lot for your comment.

June 30, 2018
A MyLupusTeam Member

I haven't, but I did take Fosamax and wish I hadn't. It ruined my teeth. My dentist ask if I took any. They had me sign a paper that if my jaw bone fractured it was not their fault. I improved my bone density by walking. Make sure they do blood work to make sure you have enough calcium. I didn't and the drugs leached the calcium from my teeth. The two drugs may not work alike but I would recommend you do research before taking it.

June 30, 2018
A MyLupusTeam Member

Thank you for your response Mosie. How long have you been on Prolia? How well has it been on increasing your bone density? I frequent the Regenexx site and saw that once taken off the drug research is showing vertebral fractures can occur.

July 5, 2018
A MyLupusTeam Member

I get my 2 Prolia injections yearly. I am prone to dizziness, so I fall often. So far only 1 fractured rib, & that was after a tumble down the stairs.

July 5, 2018

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