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A MyLupusTeam Member asked a question 💭
Virgina Beach, VA

Looking to get some feedback on CBD Oil. How you used CBD Oil and if so, did it help with inflammation.
Over the last few months I been having flare ups. They seem to go away and then a few days later another one.
I am currently on no medicines for Lupus. I was on plaquenil but my Doctor took me off because it had an effect my eye site.

October 28, 2018
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A MyLupusTeam Member

I tried 2 different hemp CBD oils, no effect. Tried a 1:1 tincture and it makes my BP too low, making me even more fatigued. I have naturally low BP to begin with. If you decide to try CBD,start low and titrate up slowly. I tried for a month and couldn’t get it to work out for me. If you have problems sleeping, it could help. If you take Meds to reduce your BP, be aware that you may have to adjust your BP med dosage. I think it’s important to find a good physician who has knowledge of CBD treatment. Good luck.

November 7, 2018 (edited)
A MyLupusTeam Member

Some people rave about CBD. I don’t really see that much of a difference. Maybe I’m not taking enough? I wish there was something to help with the constant aching.

November 5, 2018
A MyLupusTeam Member

I have been on Plaquenil for 20 years and so far no eye problems. It really varies obviously.

October 29, 2018
A MyLupusTeam Member

Lisa I was on it for almost ten years and that when it started to have an effect on my eyes. Mainly my left eye.

October 29, 2018
A MyLupusTeam Member

I have used it with limited results. It is very good for nose and mouth and tongue sores. My son has good results with the CBD Oil. We also have our mmj cards and vape. Vapeing works great for me.

October 28, 2018

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