I was recently diagnosed with gastroparesis and swallowing dysphagia. I was reading that Lupus can cause the gastroparesis and wondered if anyone else has experienced this. It seemed to come upon me rather suddenly too.
I was experiencing terrible heartburn, bloating, trapped gas, and stomach distention. At night it was like I was 7 months pregnant. My stomach would make so much noise it was embarrassing. It sounded like I was passing gas but inside my stomach. At the time I was following Weight Watchers to lose weight so I was eating quite healthy and had been for quite a while. This included many fruits and vegetables, low carb, high fiber, high protein diet. I was careful of processed foods due to inflammation and doing a lot of what would seem to be the right things. As it got worse I was gagging a lot and finding it difficult to eat. I never expected to receive such a diagnosis.
Though overwhelmed at first by the diet plan, I have found that I am feeling better now that changed my diet. If you have not had a GI consultation I would recommend it and ask them to include an endoscopy and maybe the GI transit study which would show the delayed food in the stomach which would cause excess acid. Let me know what happens.
Lupus causes loads of stomach and upper gi tract problems.
OMG! I just looked up esophageal dysmotility. Is THAT what was causing the lump in my throat that made it hard to eat and the terrible pain/heartburn after eating?!? 😳
Thanks for your feedback! I guess the most important thing is to get enough nutrition. Take a look at the FODMAP list of foods too. I was given this list to find the foods that irritate the digestive system. I tend to have IBS and noticed that even following the gastroparesis diet I am still having problems. It is overwhelming to try to combine both plans, but the GI doc I saw yesterday thinks the problem is more about my esophageal dysmotility and FODMAP foods. Like you, though, I am much better since eating small amounts of easily digestible foods.
I saw my rheumatologist yesterday and asked about the gastroparesis. He said the most common cause is diabetes and after that, autoimmune disease and he blamed mine on my Lupus/AI disease
I asked if it was worth seeing a specialist (years ago there was noting they could offer me) He said there’s been little progress in treatment but there are a few options these days that might be worth checking out. He did suggest mine could improve with the Plaquenil tho! I’m hoping that’s the case
The more I think of it the more I realize how this condition determined so much about my eating habits from the types of food I eat to the amount etc. I eat like a bird because any bigger of a meal would lead to bloated stomach and panic attacks
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