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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question ๐Ÿ’ญ
Holtsville, NY

I had my first Benlysta infusion on Friday ( 3 days ago) and I have been feeling really achy and tired and in a ton of pain for days now. Has anyone else experienced this or something similar? Does it get better after you get more infusions? Any answer is helpful!

May 13, 2019 (edited)
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Learn more about the drug treatment mentioned above.
A MyLupusTeam Member

Maybe ask if they can measure your inflammation? They can probably give a steroid to reduce inflammation if it increased. I hope you feel better soon.

May 13, 2019
A MyLupusTeam Member

I have had 6 infusions and no side effects. I'm also taking 25mg of imuran and 2.5mg prednisone. I have a few shoulder and hand pain but
Nothing when I wake up. Once moving I'm much better. Tell your rheumatologist . Sorry you are in pain. Prayers to you.

May 13, 2019
A MyLupusTeam Member

Danielle ๐ŸŒบ
I really have never tried this , not sure I know what they are . ๐ŸŒบ๐Ÿ’ž

May 13, 2019

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