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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question πŸ’­
Logan, UT

I have been feeling really well for the most part for weeks now. Thank the LORD.πŸ™πŸ™πŸ™ The other day I woke up with sore joints again. Blisters on my eye lids that just keep coming one at a time and also in my mouth. Anyone else get this before a flare hits?

September 28, 2019
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A MyLupusTeam Member

hi everyone i can say i have had sores in my mouth their really like an ulcer i have a prescription mouth rinse the doctor gave me it works great i also get a yeast infection in my mouth and throat and the rinse works for that i've never had them on my eyes when i have a bad flare up i get sores on my face and chest and sometimes arms their like chickenpox you may want to see your doctor he may have something he can give you i also take predizone when i flare up bad but i try not to i don't like the side affects from it

September 29, 2019
A MyLupusTeam Member

Sores in the mouth and nose so painful at times i usually use baking soda in the mouth and some neosporin in the nose they both help

August 24, 2020
A MyLupusTeam Member

I suddenly started to have blisters in my mouth and swollen gums that easily bleed. My dentist said it was autoimmune. I saw multiple doctors who couldn’t help me. Finally found an endodontist who did 2 oral biopsies. Diagnosis is mucus membrane pemphigoid. My body is attacking my mucus membranes. I’m told it’s rare and there isn’t much in the way of treatments. I’m using a steroid rinse which helps but it’s no cure. I tried an oral steroid which had no effect. I’m told I can get steroid injections in my mouth but it wasn’t recommended. Still looking for answers.

February 4, 2020
A MyLupusTeam Member

I get a sore in my nose that is it

October 19, 2019
A MyLupusTeam Member

My ears get sores and that is worse. The sores in the mouth you can get
an anti-biotic mouth wash, called--myostatin.
I wonder if I spelled it correctly??
mickey

October 5, 2019

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