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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Staten Island, NY

Ive been just recently seeing a rhematoid doctor about possibly having lupus (I have every single symptom plus a positive ANA). Before he said he wanted to tell me i.t was lupus he wanted me to see a dermatologist for them to look at my rash. The demratologist said rosacea which I do think I have because ever since I was a baby I always got really red but now I see a butterfly rash whenever flare up symptoms occur such as nausea, vomitting, joint pain, lower back aches, body aches, hot flashes… read more

February 20, 2020
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A MyLupusTeam Member

Dermatologists will always call it rosacea so I'm not surprised. Especially since a rosacea diagnosis requires no tests. It's what I call the "easy answer". All it takes is having a red face and bam, you're slapped with a rosacea diagnosis. Three dermatologists I've been to all diagnosed me with rosacea whereas the rheumatologists I see are more fixated on Lupus and Mixed Connective Tissue Disease because all of my other symptoms that accompany my red face. Technically you can have both, but my skin doesn't respond to any of the rosacea creams. It responds better to immunomodulatory medications.

February 20, 2020
A MyLupusTeam Member

Ask dermatologist to biopsy your rash. He really should have done it in the first place when trying to determine lupus.

February 20, 2020
MyLupusTeam

Are you wondering if your symptoms are due to rosacea, lupus, or both? Here are some insights from the knowledge base:

- Lupus Rash: The malar or "butterfly" rash is typical of lupus, covering the cheeks and bridge of the nose. It can be scaly, flushed, or raised and is often photosensitive
- Photosensitivity: Lupus can Show Full Answer

Are you wondering if your symptoms are due to rosacea, lupus, or both? Here are some insights from the knowledge base:

- Lupus Rash: The malar or "butterfly" rash is typical of lupus, covering the cheeks and bridge of the nose. It can be scaly, flushed, or raised and is often photosensitive.
- Photosensitivity: Lupus can cause sensitivity to sunlight, leading to rashes, flushing, or sunburn-like reactions.
- Ulcers: Lupus can cause ulcers in or around the nose and mouth.

For an accurate diagnosis, consult your healthcare provider.

July 28, 2024
A MyLupusTeam Member

Mine spread from my face down my upper arms and down to ribs. It was embarrassing to me and puzzling to the doctors, but was finally diagnosed 7 months later. My mom first broke out on back of her neck, then above her eyebrows, then the butterfly across her face a year later. Took her 2 years to get a diagnosis.

February 20, 2020
A MyLupusTeam Member

It could be both. I've only heard about the butterfly rash being on the face. However for the pass few years I've been getting a rash on both of my forearms. My doctor wants me to see a dermatologist about it. But since them my rheumatologist has diagnosed me with Lupus.

February 20, 2020

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