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With the pandemic going on, I was switched from monthly benlysta infusions to injections every week to avoid needing to go to the hospital. I'm just curious if anyone else feels flu-like, fatigued, and receives migraines on their injection day? Will these symptoms subsided after frequent use? I've had about 5 injections and still feel these symptoms. I prefer to have infusions since it's only once a month and I can sleep till the next day. I've also been on infusions for 5 years. With… read more
Learn more about the drug treatment mentioned above.Thanks for the suggestion LAlthea. I just don't want to sound like I'm complaining when I see my rheumatologist next month, so I was trying to see if in the long haul it will get better. Also, before starting injections I already voiced that I would like to go back to infusions when it is safer to be in the hospital. I get the worst anxiety knowing I need to stick myself every week. I've been in the medical field for years and can stick other people, but I just can't do it to myself lol. I also can't go outside of my military hospital for infusions, because for some reason Tricare will not approve it. I have to say though that benlysta seems to work really well with me. I had so many more symptoms before being on it. LAlthea I hope you are having a pain free day, and thank you for responding.
Haven’t made the transition, but encourage you to discuss your health and concerns with your rheumatologist & try to go back to monthly infusions.
Ask about an infusion center to receive Benlysta rather than the hospital’s infusion center.
Prayers for your healing 🙏🏾.
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