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I have been thinking about it alot and feel like I would try it especially if it helps ease my anxiety of leaving my house. I barely leave home and I am avoiding everyone including my mom and MIL. I do not like being like this one bit but I don’t trust anyone and it feels icky to think that way.

What are you guys’ thoughts on the vaccine? Would you do it ?

And please don’t argue just share your thoughts and respect one anothers opinions. 💜

November 23, 2020
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Answer Summary

Members shared deeply divided perspectives on COVID-19 vaccination, with many expressing fear about side effects, concerns about testing on... Read more

Members shared deeply divided perspectives on COVID-19 vaccination, with many expressing fear about side effects, concerns about testing on immunocompromised populations, and distrust of a rapidly developed vaccine, while others felt the protection outweighed the risks given lupus patients' vulnerability to severe COVID outcomes. Several members consulted their rheumatologists, with mixed guidance ranging from strong recommendations to get vaccinated to advice to wait for more data, and some members reported personal experiences including mild vaccine side effects like sore arms and fatigue, flares lasting a few days, or successfully tolerating all doses without issue. A recurring theme was the tension between wanting protection from a dangerous virus and needing to weigh unknown long-term effects, compounded by misinformation circulating online, previous negative vaccine experiences, and the reality that immunosuppressive medications may reduce vaccine effectiveness.

A MyLupusTeam Member

Jams is correct. I have a strong background in medical industry and immunology which most all therapies being studied for cancer, vaccines, Lupus, etc are surrounding using and testing our own bodies how to recognize specific pathogens that are harming us. All cell (antigens or pathogens aka invaders) have a specific antigen presenting cell. This is one is the spike protein that disguises it from others (I'm not getting as in depth as it really is but this I hope helps.) No live virus will be in your body. Please see explanation on Pfizer's website. Both Moderna (dose dependent) and Pfizer the two companies currently talked about with vaccines achieving 90% - 95%) efficacy work the same way as described below. Please speak with your MD's but like another member here I'm in CA and my Rhuemy is Dr. Venturapalli who works with Dr. Wallace (who many of you may have heard of.) They are affiliated with Cedars Sinai in Beverly Hills a very well respected medical hospital and research center who always participates in clinical trials. I will be getting this vaccine. Covid is actually very dangerous to us who have Lupus for several various reasons. I feel confident in my own research that I would like to take this vaccine as soon as it's my turn. I will consult with my Rhuemy first as always! Bless you all!!

Pfizer Investigational Vaccine

"What kind of vaccine is the investigational vaccine?

"The investigational vaccine is an mRNA vaccine. It is a kind of vaccine that gives a body's cells instructions to make viral proteins that can be recognized by the immune system. It contains a small part of the genetic code for the SARS-CoV-2 spike protein. By delivering the mRNA to the body’s cells, the viral protein is expressed and an immune system response is generated against it, with the goal of preventing COVID-19 disease. The vaccine does not contain any live virus."

"How are mRNA vaccines different than traditional vaccines?

There are many different types of vaccines used to help prevent infections, and all have the same goal: train your immune system to recognize and defend against organisms that cause disease by producing disease-fighting antibodies and activating immune cells, such as T-cells. Some conventional vaccines may be made up of weakened, dead, or noninfectious parts of a virus or bacterium. mRNA vaccines are different because they contain information about the infectious agent to give a body's cells instructions to make a viral protein that can be recognized by the immune system."

I hope this helps a bit for some.

NOTE: FYI their are no stem cells (referring to baby fetus answer) in this or any vaccines studied thus far.

November 25, 2020
A MyLupusTeam Member

Hi, I liked to offer my 2 cents. As a Lupie warrior, my rheumy has advised his opinions. He stated it made no sense based on his history and Knowledge as a rhuemy,to inject dissease into a person whose immune system is already compromised. He then asked if I had any side effects with the flu shot. I did become very ill, so he then said Luckily I was able to fight it off, but brings his point. Some of us may not have the actual physical strength to fight the anti-bodies injected into our systems With that being said, I have no plans on taking the vaccine. I will take my chances on me and practicing being EXTRA safe as we must do anyway. Thats just my take on it..

November 24, 2020
A MyLupusTeam Member

I saw my Rheumatologist and he said it was not tested on Lupus patients we should wait till March to see the effect first. He has not given me the all clear for it. Also the other 2 vaccine that are coming out Johnson and Johnson and the othther one I cant remember right now he said under no circumstances should a Lupus patients take

January 15, 2021
A MyLupusTeam Member

As a person with lupus, I'm also just positive with covid. So far I've had mild symptoms: cough, muscle/joint pain, headaches, sniffles, beginning of a sore throat, fatigue. They say that your lungs get Inundated with your white blood cells and starts to attack your body with covid, just like lupus does to our bodies. With me being on plaquenil and 2 immune suppressants, I wonder if that has helped my lungs not to get seriously infected?? Just a thought of course

November 30, 2020
A MyLupusTeam Member

On top of that...may I add. This is a very rushed, RIGHT nOW type of thing. What are the long term effects? How will effect the next generation? How does this ply out in the immune systems of so many who are compromised? Too many questions,

November 24, 2020

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