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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question πŸ’­
Guston, KY
August 8
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A MyLupusTeam Member

I have gotten every COVID vaccine each season with no problems. We all respond to medications and vaccines differently. Because some people believe they are not FDA-approved, I wanted to be clear. Some are FDA-approved, and some are not. I suggest you speak with your doctor and pharmacist with any concerns you may have to help you decide what is right for you.

Here is some information for you to consider.

Overview of COVID-19 Vaccines and Vaccination | Covid | CDC https://share.google/m6VLQIVwMjH0pWpJS

New kind of flu shot is on the way as the FDA approves Moderna's mRNA-based vaccine | PBS News https://share.google/7wZIEw6ohFohTVebm

https://share.google/m6VLQIVwMjH0pWpJS
New kind of flu shot is on the way as the FDA approves Moderna's mRNA-based vaccine
New kind of flu shot is on the way as the FDA approves Moderna's mRNA-based vaccine
August 8 (edited)
A MyLupusTeam Member

@A MyLupusTeam Member, I no longer care what anyone thinks when I say this, but my Lupus symptoms didn't start until I was forced by my previous employer to take the COVID vaccine. I understand that I already had SLE , since on average it takes about 7 years to get a lupus diagnoses, but shortly after receiving the second shot, I ended up in the ER and was admitted for 7 days with pericarditis. So no, I do not recommend those with compromised immune systems to take the COVID vaccine; also, I can and do take the flu vaccine with absolutely no issues. This is my truth, and always listen to your body, and I hope this helps.

August 8
A MyLupusTeam Member

@A MyLupusTeam Member, I have also kept up to date with COVID vaccines without any problems and agree with @A MyLupusTeam Member.

August 8
MyLupusTeam

Are vaccines safe for people with lupus, and what should be known about the COVID-19 vaccine specifically?

It's completely understandable to have questions or hesitations about vaccines, especially when managing lupus. Here's what health experts say:

The COVID-19 vaccines currently available are not live vaccines, which means Show Full Answer

Are vaccines safe for people with lupus, and what should be known about the COVID-19 vaccine specifically?

It's completely understandable to have questions or hesitations about vaccines, especially when managing lupus. Here's what health experts say:

The COVID-19 vaccines currently available are not live vaccines, which means they cannot cause COVID-19. They are considered safe for people with autoimmune conditions like lupus. People with lupus are often at higher risk for severe illness from COVID-19, particularly those taking immune-suppressing medications. Health organizations like the Lupus Foundation of America and the American College of Rheumatology strongly recommend staying up to date with COVID-19 vaccines.

Key things to know:

- Vaccines are safe and won't trigger COVID-19
- Your doctor may suggest timing the vaccine around your treatment cycle
- Some people with lupus may need extra doses if their immune response is reduced by medication
- If you take voclosporin (Lupkynis) for lupus nephritis, Paxlovid is not recommended due to drug interactions

Whatever you decide, it's really worth having an open conversation with your lupus care team. They can help weigh the risks and benefits based on your specific health situation. No pressure β€” just good information to help you make the best choice for *you*. πŸ’™

August 8
A MyLupusTeam Member

I got the original shots that you had to get 2 of them but have not gotten any more. I have had covid twice so far. The 1st time was really bad and it almost killed me. The second time was no where near as bad.

August 10

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A MyLupusTeam Member asked a question πŸ’­
Boston, MA