Does anyone else have stomach issues with lupas ? I have so much stomach pain and no one can seem to find the cause of it. It is around my old gallbladder scar/ hernia scar but it radiates down. I do suffer from. Horrible constipation sorry TMI. I have went to the ER, drs, pcp and now I am seeing a new gastro. The prior gastro just kept telling me it was due to me not going to the bathroom. Its killing me all the time . Any help would be great
I'll be praying for you. Get all new doctor's....! When I was so sick...they didn't know what to do next they kept giving me more meds...I stopped! I got all new doctor's...I am now on a different path. Remember keep the faith...the Lord is really good. I'm no saint no reborn catholic..I just believe because I made through thru a really bad time.
I had my gallbladder removed when I was 29 I am now 59 so it has been 30 years of abdominal flares which feel identical to gallbladder pain Same spot that stabs through the back Since my early 20’s I have eaten a very low fat diet with nothing fried grilled chocolate spices including onion peppers I eat small amounts as the pain gets worse with a meal In my teens and 20’s I had loose stools Since then I struggle with constipation and over 30 years I am laxative dependent I have tried everything and my GI Dr. told me if it takes 20 laxatives/stool softeners a day to get it out to take them I HATE this but when I don’t I end up in the hospital with a bowel blockage with an NG tube down my nose down with sucking out from the top with a surgeon on call ready to take me in to surgery Back to the flare ups of pain that feels like gallbladder pain all over again which is frequently accompanied by nausea vomiting weight loss I weigh from 94lbs up to 164 I’ve been on maintenance dose of prednisone for over 20 years with prednisone boost for bad Lupus flares I have struggled with this for 30 years I end up getting so weak and dehydrated that when I try to stand up I pass out and end up with severe bruising fractured ribs head injuries. II end up back in the ER with morphine and 3 bags of fluid just in the ER before I get admitted The severe pain hurts all day long but is worse in evening last weeks to months on average but are getting more frequent and last longer Flared real bad in June 20 Hospitalized twice once for severe dehydration that my SLupus worsen and I was going into kidney failure I have been to ER when I could no longer stand the pain and nausea where they give me morphine, Zofran and bags of fluids. This time I have lost 40 lbs, had severe dietary conditions and live curled up on the couch with a pillow and heating pad which doesn’t really help but it feels comforting Went t GI Dr who did ERCP and only found an ulcer The ulcer has healed however I feel no better I don’t know where to turn to next I have considered suicide as I have many other heath issues Have lived with chronic pain for 37 years but with my faith and love for my husband of 39 years I can’t go through with it I am currently in a bad SLupus flare put it off so long
that I can barely talk eat
mouth lips nose ulcers on higher dose of prednisone which had its own set of problems Guess I needed to vent as it has been a tough year with pneumonia in Jan 20 pneumonia in February 3rd pneumonia March ended up being Covid I went to hospital with high fever,lpneumonia in both lungs dehydration coughing so hard thought it would never stop, severe headache body aches so sick for three weeks but have lasting effects CT scans showed kidney cancer which was removed 4 years ago had grown another tumor would need biopsy soon as over Covid Had biopsy no sign of cancer all scar tissue I feel for all of us Thanks for listening to me share a piece of my story
Omg yes i have been experiencing alot of constipation too and my doctor doesn't know why either they just keep telling me to take fiber every day or miralax but i hate being on laxatives
Yes, many do. Stomach, colon, everything.
Same here! My body was attacking my liver and kidneys a couple months back and now i continue to have pain around my liver/gallbladder. And too have always had bathroom issues..hope you find some relief soon!