Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My mouth has bleeding on & off!! I jst started getting mouth sores on n off bt pieces of my teeth been coming out!! Have any of experienced this with ur Lupus!! I'm getting really scared now!!

February 25, 2021
 · 
Reactions
A MyLupusTeam Member

My teeth broke into pieces eventually. It seems to all be autoimmune related for me.

February 27, 2021
A MyLupusTeam Member

My mouth is sore all the time. I do get sores, but it feels like I've eaten really hot food and burned the inside of my mouth (when I haven't) all the time. My teeth have been chipping also, but the dentist says they are fine. They think I'm grinding and I know I'm not. I tried a mouth guard. The dentist prescribed me Magic Mouthwash, but no one has the ingredients to make it here. My mouth is torn up from eating anything with substance. Example: If I eat cereal, my mouth becomes raw. It's not hard cereal either. Several years ago, my dental implant came loose and another time, my cap came off. I have not been diagnosed with Sjogren's, but everything points to it. I can wake up with my tongue stuck to the roof of my mouth, my eyes sealed shut, sores in my ears, mouth, nose, and my GYN cannot even get a sample for my annual. Now that is super painful! I keep smiling though. Lupus does not define me...or you!

August 9, 2023
A MyLupusTeam Member

OMG! 🤗
I have been battling mouth and tongue sores too for the past year.
The past two weeks a painful tongue sore shooting to the back of my mouth is worrying me!
Still waiting to see my doctor.

You should definitely see your doctor! 🤗🙏

February 25, 2021
A MyLupusTeam Member

In the last year all my bottom teeth have with rotted or just broke. I’m on medi-cal and they don’t pay for dental or there aren’t any dentist that take Dentical in my county. My mouth gets sores and it hurts now quite often. I had someone say oh she must be a meth head, you can tell by their teeth. Yikes, really I have lupus… it is so embarrassing. I have dentures in my top. But I’m guessing I would have the same problem had I not had other issues and have them pulled several years ago. Wish I would have talked my dentist into pulling them. But he said they were in good shape and to always try to save them. Does anyone else have rotting mouth from lupus??

July 15, 2021
A MyLupusTeam Member

JAMS mines do 2!! Thanks everyone y'all are very helpful & I experience same thing y'all do thanks for advice n help!!

May 29, 2021

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Mooreland, IN

A MyLupusTeam Member asked a question 💭
Tulsa, OK

A MyLupusTeam Member asked a question 💭
Reading, UK