Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Henderson, NC

I know this may be weird and sound weird but have any of you ever experienced your feet feeling very warm and hot right before bed? Followed with leg and ankle pain? Idk its weird but it happens every night my feet feel warm and hot i put them on my husband and he says they’re freezing 🤦🏽‍♀️im so tired of trying to figure all this stuff out

October 15, 2021
 · 
Reactions
A MyLupusTeam Member

Yes I experience hot feeling in my feet as well. I have fibromyalgia. Also neuropathy that causes warmth and tingling. Cold hands that turn color at any hint of cold. Which in my case is Raynauds. They are cousins to lupus. Fibromyalgia and Raynauds. I thought it was diabetes but thank goodness it's not! Do your feet itch on the inside? Feels like something crawling in both feet. Anyhoo...take care of yourself. Warriors!!!😊

October 19, 2021
A MyLupusTeam Member

I was dx with PAD and they say the constant pain, strange sensations, warm, burning, needle prickling etc is neuropathy. They can give you you meds for it. But the Cold purple, red, blue is considered Lupus. Nothing gets rid of it except for Gabapentin and Ropinirole.

October 16, 2021
A MyLupusTeam Member

It might be neuropathy Cathie

October 18, 2021
A MyLupusTeam Member

Hi,
I have this in my case it is neuropathy and I take Neurontin. The purple feet could be Sjögren’s syndrome. The twitching might be restless arm or leg. I have had all 3 of the above.
When I first began to see a rheumatologist, I wrote out all of my symptoms. I had so many varying symptoms I thought the doctor would think I’m loosing my mind. Nothing made sense to me. It is important to discuss theses with your doctor, and the doctor will know how to treat all of them.

October 16, 2021
A MyLupusTeam Member

Hi Yes my legs & feet are very hot to they are achy to also l get twitching leg syndrome it’s really a weird feeling to . There’s a lot of different symptoms that goes along with Lupus..it’s good to hear what what other people put up with & what they take .Thanks to all of you ..

October 15, 2021

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Batavia, IL