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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 26
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A MyLupusTeam Member

Put some socks on your feet. It’s Raynaud’s I have it. Just be careful because my doctor explained to me it can get out of control and cause gangrene.

September 26
A MyLupusTeam Member

Thank y’all. Sending prayers for you both

October 5
A MyLupusTeam Member

My toes are always peeling

September 26
MyLupusTeam

Yes, other MyLupusTeam members have definitely noticed this! One member shared that their feet turn a purplish-red color with burning and itching, while another mentioned their hands and feet are always ice cold.

What's being described sounds very much like Raynaud's phenomenon, which is closely linked to lupus. It happens Show Full Answer

Yes, other MyLupusTeam members have definitely noticed this! One member shared that their feet turn a purplish-red color with burning and itching, while another mentioned their hands and feet are always ice cold.

What's being described sounds very much like Raynaud's phenomenon, which is closely linked to lupus. It happens when blood vessels in the feet and toes constrict, reducing blood flow and causing coldness, numbness, and color changes. During a Raynaud's episode, toes can cycle through colors — white, blue, then red — as blood flow is reduced and then returns. For people with darker skin, these color changes may be less obvious.

Some helpful ways to manage this include:

- Wearing warm, wicking socks
- Avoiding sudden temperature changes
- Keeping feet away from cold surfaces or cold water
- Gradually warming up with warm (not hot) water if an episode starts

It's worth bringing this up with your doctor, especially if it's happening frequently. They may want to review your current treatment plan or refer you to a specialist.

September 26

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