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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Rhuemy

A MyLupusTeam Member asked a question 💭
Hagerstown, MD

so had my first rhuem appt 2 weeks ago and he went thru all my recent labs and all that and i told him all my symptoms and so he orderd labs 13 diff blood tests includind hepatic panel,ana,rf,anca,vasticulitus,hla b27,and xrays.got all that done came back today for follow up and everything was normal other than i found out i had scoliosis. And that my hla b 27 remains positive but nobody seems to know why. So idk what to do nobody knows what happend when i went to the er for a high wbc count of… read more

February 9, 2022
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A MyLupusTeam Member

Keep looking for the right doctor. DO NOT GIVE UP

February 10, 2022
A MyLupusTeam Member

Try another rheumatologist, dear. Did he ask for anti DNA as well, C3 and C4?
Don't give up. Hugs to you

February 10, 2022 (edited)
A MyLupusTeam Member

You could try a bone marrow test as well. Just so you know and mention this to your doctor

February 10, 2022
A MyLupusTeam Member

I was only diagnosed two years ago, but I'm certain that I've had Lupus for at least 4 or 5 years. Don't give up. I had the butterfly rash that you seem to have in your picture. However, I didn't know it was related so never told doctors about it. My point is, sometimes, unfortunately, it takes so much for all of the pieces to come together even when you know something is wrong. It is crazy making. Hang in there.

February 9, 2022
MyLupusTeam

It seems like you're referring to a rheumatologist. Here are some tips for visiting a rheumatologist for lupus care based on the knowledge base:

1. Track Your Lupus Symptoms: Each person’s experience with SLE is unique. Keep a detailed record of your symptoms to discuss with your doctor.

2. Prepare Questions: Write down any Show Full Answer

It seems like you're referring to a rheumatologist. Here are some tips for visiting a rheumatologist for lupus care based on the knowledge base:

1. Track Your Lupus Symptoms: Each person’s experience with SLE is unique. Keep a detailed record of your symptoms to discuss with your doctor.

2. Prepare Questions: Write down any questions or concerns you have before your appointment. This helps ensure you cover all your concerns during the visit.

3. Bring Support: Consider bringing a close friend or family member to help you remember the information shared during the appointment.

4. Ask About New Symptoms: Inquire about any new symptoms you should be aware of based on your current diagnosis.

5. Discuss Treatment Options: Ask about your treatment options, their side effects, and ways to reduce the risk of these side effects.

6. Home Care Tips: Find out what you can do at home to help yourself feel better and prevent lupus flares.

7. Lifestyle Adjustments: Ask if you need to avoid any specific exercises, foods, over-the-counter medications, vitamins, or supplements.

8. Latest Advances: Discuss the latest treatment advances for lupus and whether they might be beneficial for you.

For more detailed information, you can refer to the article "Lupus Appointment Guide: 8 Tips for Visiting a Rheumatologist" on MyLupusTeam.

July 28, 2024

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