I had a rash on my face on both sides. Dr. Thought it was poison ivy and it wasn't. Didn't kniw what it was. When I found out I had lupus it all made sense what I was experiencing. I was diagnosed with fatty liver disease too. All led to lupus.

I don't really know because as a child I was always cold and I stopped walking when I was 8 years old.The doctor said that it was growing pains.I grew up living a basic life as far as pain go and then in 2000 I woke up one day and I was to tired to go to the rest room and I was aching all over,I had no idea what was wrong.That's when I was first diagnosed with Fibromyalgia in 2000.I wasn't diagnosed with lupus until 2017.

Keep doing the best you can. Think about that tens unit for pain if your in pain. Reach out to us and we all can learn and help the other. I understand so tired I don't want to move after 10 hrs sleep, but do because if I don't I might end up in nursing home. I will chat at least once a day for the most part. If something is helping someone else and doesn't require a Dr order try it for your self. Read all you can on the disease and treatments so you can make good decisions about your care. I will be praying 🙏 for you and everyone else it doesn't cost a thing...kkc

I don't know what it's supposed to help. I had a serious adverse reaction on them. So can't take them...kkc😑😝

Oh, wow. Thank you for your response. For me, it started with a red rash across my cheeks. I would have episodes where my heart would be beat super fast, I would get shortness of breath, and my cheeks would get very hot and red. Have your lupus meds helped with your mobility and fatigue at all?