@A MyLupusTeam Member, this happened to me too. My husband couldn't understand and used to ask me "why are you in such a bad state now, if before the flare you were fine?". I could only say "I don't know."
But the reality is that we are only diagnosed with lupus after we have a flare up big enough that it screws with our immune system completely. So after this big diagnoseable flare up, be sure, your body will not go back to normal. And it may get worse and worse until you find a treatment that balances your immune system.
The objective now is not get back to normal, but to reach remission. Remission is very good, but it doesn't normally mean completely flare-free.
Hope this helps you.
Big hug and love.

Mentioned Users

A MyLupus...

Hi. You are just in the beginning of your disease. It took 6 months, 5 specialists to find it. I could have kissed my rheumatologist when she asked me if I had these symptoms and I said yes. Finally. One dr told me to go see a psychiatrist, dick head. Along with bad sore in mouth, nose and on scalp, my hands and feet were so swollen I couldn’t even wear shoes. I couldn’t hold a cup of coffee except with my 2 wrists, washing hair, I had to place hand on head and move it with opposite hand. You can only imagine what doing my toiletries were like, they weren’t. But once I was diagnosed I was put on 50mg of prednisone and 400mg of plaquenil. It was almost instant relief. To me, prednisone was a miracle drug, and I started getting better and i slowly went down on them to 15mg. Thru the years I’ve had to up and down them but it’s 36 years. I wish drs today would start with prednisone and then change to a different drug, because they’ve used prednisone for over 70 years for lupus and a host of other diseases. Get on some sort of therapy immediately so it doesn’t get worse. My daughter, sister and niece I knew had lupus so they got diagnosed before they got so bad and only used plaquenil for a while. My dr knows my feelings about it and I told him I won’t ever go off of them because I’m scared of getting that I’ll again. I’ve had no bone loss, heart issues or lung. My kidney problems come from using Advil aleve etc. Maybe I’m one of the lucky ones but for me, quality of life is more important to me than maybe having a few extra years but suffer in severe pain. God gave man brains to invent drugs to help humans. I feel that we should have a choice in our own care, as long as the facts are known, no matter what drug you use. 71 and still working, going to all the kids games. I love life so much that I fight tooth and nail, along with God, that can still be here in 20 years. 🙏🏻🙏🏻❤️

Odds are you would have hit this new rough spot even without the diagnosis.
I’m another that can tell you that eating healthy will have a big positive impact. You may still need some meds but likely fewer. With a healthy eating plan you’re giving your body the building blocks it needs. It will greatly reduce inflammation then meds/supplements will take it further.

I was diagnosed with Lupus in 2000. You have good days and you have bad days. The bad days are lupus flares, when you feel worse. Then too, you may be diagnosed with other crippling illnesses like myself. I have Lupus, Fibromyalgia, and Sciatica. By far, for me, sciatica is the worst because it is nerve pain that radiates from the lower back down one leg or both legs. Talk about pain....I either wind up at the pain clinic or the emergency room. In regards to Lupus, it causes me to be extremely fatigued and it causes a lot of joint pain in my neck, shoulders, back, hands, knees, and ankles. You will feel so bad, and then you will feel better, thus called a flare. Once your rheumatologist gets your medicine in the right dose, you should get some relief.

Thanks