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It's like a crawling and tickling all over and both at the same time. I bugs me until I tighten every muscle that I can just to get a couple of seconds of relief. Been going on for about two weeks if not longer. This is the reason for my not sleeping On a night that it will stop long enough for me to sleep it usually only about three hours
Yes I do. It’s like I want to jump out of my body. I have to try to calm down and stop talking. Just be to myself.
I am a night as well. I have 3 numb toes on both feet. I have restless legs too. I take med for my legs. My toes I deal with. Yes all gets aggravating.
I'm a nite owl getting maybe an hour sometimes 2 hours of sleep at night. The neuropaghty in my legs and feet is really bad. I take 1200mg gabapentin in am and at bedtime but I am also diabetic. I think the sleeplessness is due more to anxiety and depression. I have such horrid nightmares if I go to sleep so I would rather stay awake.
Yes I do. But I have neuropathy and fibromyalgia…. So I understand girl like it never leaves NeVER!!! It’s like I just have to deal with it. I take gabapentin 800 4x a day and amitriptyline 50mg at bedtime. Fall off to sleep 3-4 hours up the rest of the day… until my body just give up on or about the 3rd day I fall asleep 2 then later 1.5 hours… and this cycle starts over again… Lupus is a trip girl. I’m just trying too keep up with my new lifestyle. Not easy but, God knows the plans he HAS for me and you! We are born to WIN! This disease is not built for everyone, some people in our past probably have given up but we still stand so we are warriors! And again WE WIN! Be blessed ladybug 😘💚
Yes, many people with lupus experience trouble relaxing in the evenings and staying up all night due to a crawling or tickling sensation. This sensation, sometimes referred to as paresthesia, can feel like bugs are crawling under the skin and may be accompanied by other symptoms like itching or skin rashes. It can be Show Full Answer
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