It’s like for every 2 good days it follows up with 4 bad days. Nothing helps I stay in bed all day because I be tired or sore to move.
I try. It’s a constant struggle I went from doing a million things a day to barely being able to do anything.
It sounds like you are all fairly new to lupus?? I've lived with it for 37 years, in case you want to check out my story for suggestions on lifestyle management.
Take care, all!
Some days I have the energy of 2 year old and get a million things done, then I get hit with a wave and can’t do much for like 4 days. I just listen to my body and stay hydrated.
Tons of rest!
Hi Tanya, im a newbie here. Im the same myself,its a real struggle to even get dressed much of the time. Ive been getting 2 days a month,,,3 if im lucky,a month where i manage to clean or let people around to visit.