Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Nye, MT

It’s like for every 2 good days it follows up with 4 bad days. Nothing helps I stay in bed all day because I be tired or sore to move.

February 18, 2023
 · 
Reactions
A MyLupusTeam Member

I try. It’s a constant struggle I went from doing a million things a day to barely being able to do anything.

February 18, 2023
A MyLupusTeam Member

It sounds like you are all fairly new to lupus?? I've lived with it for 37 years, in case you want to check out my story for suggestions on lifestyle management.
Take care, all!

February 18, 2023
A MyLupusTeam Member

Some days I have the energy of 2 year old and get a million things done, then I get hit with a wave and can’t do much for like 4 days. I just listen to my body and stay hydrated.
Tons of rest!

February 18, 2023
A MyLupusTeam Member

Hi Tanya, im a newbie here. Im the same myself,its a real struggle to even get dressed much of the time. Ive been getting 2 days a month,,,3 if im lucky,a month where i manage to clean or let people around to visit.

February 18, 2023

Related Questions

View All