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A MyLupusTeam Member asked a question 💭
Marysville, CA

For example I was walking in San Francisco (30 min)a few days ago it was only 80 degrees. I had a hat and sunblock. My hands and neck puffed up followed by pain in my hands, then it feels like my fingers are breaking ( doctor says it's not RA) Also I feel like my breathing is more difficult.I'm constantly being told to lose weight but this is what happens when I do. Anyone else?

August 24, 2023
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A MyLupusTeam Member

Again I pass along what I once heard Dr. Niranjana say a colleague told her. When someone says “well you don’t look sick,” say, “well you don’t look stupid!” Ouch!! Lol

August 24, 2023
A MyLupusTeam Member

This and Wikipedia were the sites that had any information on exercise resistance. I suggest you try indoor walking exercises with YouTube videos. Maybe that can help build your resistance up.

https://www.ideafit.com/personal-training/do-yo...

August 24, 2023
A MyLupusTeam Member

ShainaLa, sorry. The most important thing is to take care yourself and do what you can, or what your body allows you to do.
We look "healthy" ( i am very swollen), but only us know how is living with lupus/ immune illnesses.
If you want, let the significant others read about Lupus symptoms.

August 24, 2023
A MyLupusTeam Member

How old are you? Only do what your body can do. Don't push it or you might pull a muscle or something.

August 24, 2023
A MyLupusTeam Member

When I explained to the doctor my symptoms like extremely swelling hands/ fingers, muscle spasms, swollen face, etc., when I do exercise, he said you have "exercise resistance" 🥴🤦 I never heard it before.
I continue doing exercises like walking and water aerobics if I feel well, but anyway I have to rest a lot after doing exercises because they strain my energy.

August 24, 2023

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