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As he was looking through all of the records including labs he acted very concerned. He said that 3 very important labs all showed Negative for Lupus. But he did say he has never in his years of practice seen anyone with such a high ANA. He did do his own labs, X-rays, and urinalysis. I go back in 3 weeks. He ask me if being on Benlysta and Azathioprine helped me feel better...I said no. He took me off of those but wants me to continue with Hydroxychoriquine. He did say I definitely have an… read more

October 12, 2023
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Learn more about the drug treatment mentioned above.
A MyLupusTeam Member

Can you please share your ANA value?
I agree with RS, it's often not clear-cut, and it can take time for lupus to evolve to the point that a definite diagnosis can be made.

October 13, 2023
A MyLupusTeam Member

Hi, I had been diagnosed with Lupus in 1986 but since then and two more Rheumotologists later - got diagnosed with Differential Collective Tissue Disease.

October 16, 2023
A MyLupusTeam Member

Thank you so much. Yes it is very taxing on me. I'll be going back to the new Rheumatologist soon.

October 14, 2023
A MyLupusTeam Member

Yes , it took monitoring from 2017 until 2021 before I was diagnosed Lupus. Also low complement 3 & 4 and IGA deficiency. Sometimes it’s a process.
Take care of yourself. Holistic optare out there also take care of your mental health this is taxing on you🙏🌺
Take care

October 14, 2023
A MyLupusTeam Member

No it hasn't. Prayers all goes well.

October 13, 2023

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New Gloucester, ME

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