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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Went to the doc yesterday for my cough that I have had since August 2023. It just keeps getting worse. Being refuted to a Pulmonologist. Was told I have Raynard’s phenomenon/syndrome, vesicular hand eczema, trauma to my finger nails,and perioral dermatitis on my chin and around my mouth. The redness on my checks and nose they don’t know what it is. My RBC, Hematocrit, Glucose (which it was 1pm and I hadn’t eaten since noon the day before),and my B12 are high. My Carbon Dioxide is low… read more

February 22, 2024
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A MyLupusTeam Member

It can be scary, but don't live your life in fear. Do what you can, when you can, and take care of yourself.

February 22, 2024
A MyLupusTeam Member

Wow Andy, Just remember 3 steps forward, 2 back is still forward progress. And remember we are here to help.. You cant be scared... tho it does happen.. I often wonder if/when this crap will kill me.. but then i have to remind myself I have way too many people that count on me.. I mumble a prayer.. and try to keep going even if it is only 1 step forward..

February 22, 2024
A MyLupusTeam Member
July 18, 2024
A MyLupusTeam Member

Keep us posted...

March 27, 2024
A MyLupusTeam Member

It’s interesting you should write that your RBC, Hematocrit, Glucose, were high and your Hemoglobin was inclining. I have been followed by an oncologist for a condition called MGUS (Monoclonal Gamopathy of Unknown Significance). I just got my labs back today for my appointment for next Wednesday. I’m not sure how I like getting my lab results before my appointment, in CA I’d get them at my appointment. Anyways, my Hematocrit and Glucose took a huge spike, and my RBC and Hemoglobin were high, but barely. Does your doctor think they are Lupus related or something else?

February 22, 2024

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Winnipeg, MB