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A MyLupusTeam Member asked a question 💭
Washington, NC

About 10 or so years ago I noticed that my right eyelid started drooping and it got so bad I had to have surgery to tighten the muscles in it… That was done in 12/18, now it’s dropping again. Like Lupus and it’s companion diseases isn’t enough 🥴🥴🥴🥴

March 23, 2024
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Reactions
A MyLupusTeam Member

I have some right eyelid drooping (ptosis) too, Hollmart. Mine is from eyelid scarring secondary to severe corneal inflammation from lupus/Sjogren's. I agree with @A MyLupusTeam Member—it's the gift that keeps on giving! 😂

Good thing we still have our sense of humor to help keep us going...

March 24, 2024
A MyLupusTeam Member

I’m Alice , That’s something I have never heard about but l do get the floaters , I will have research that at another time. I understand their is nothing about this illness is easy, every time I get on I hear of another illness to be concerned about, God bless and take care.

July 15
A MyLupusTeam Member

It's happens to me all the time, only, it affects my left eye only. Black floaters, random twitch, ptosis (drooping eyelid), and generalized facial weakness. In my opinion, it's a symptom that hasn't caught up with the times. Ocular myasthenia gravis has been ruled out. Interesting read below... I think we're trending lol 🌻😉

https://pubmed.ncbi.nlm.nih.gov/41039345/

Ptosis: an uncommon manifestation to autoimmune disease activity in systemic lupus erythematosus - PubMed
Ptosis: an uncommon manifestation to autoimmune disease activity in systemic lupus erythematosus - PubMed
July 15
A MyLupusTeam Member

Hahahahahhh🤣😝🤣…… Thanx to everyone who gave this question a whirl

April 1, 2024
A MyLupusTeam Member

Lupus just keeps on giving ! Sorry, sounds rough.

March 23, 2024

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A MyLupusTeam Member asked a question 💭
Yakima, WA