Artermis and @Missprevot--Please be sure that your doctor does a urine culture to ensure that you really need an antibiotic. Interstitial cystitis, which lupus can cause, does NOT respond to antibiotics.
Yes I thought I was crazy but I’m always on antibiotics and I’m over uti pain and eye pain and I’m now on eye steroids.
Thanks - I went to the MD yesterday and although my urine test was inconclusive for infection, because I was having symptoms of a UTI the MD started me on an antibiotic. Just hoping this is not interstitial cystitis, which I’ve read can be a part of lupus. This is the third year in a row that I’ve had these symptoms (along with facial rash and mouth ulcers). Every year, the flare has correlated precisely to my increased time outdoors with more sun exposure related to gardening and tennis. 😖
Artemis, yes, I've experienced these symptoms during a flare. I'm sure you were checked to be sure you don't have a UTI.
Yes, people with lupus have reported experiencing burning sensations in their mouth and eyes during a flare. Here are some details:
- Burning Mouth: Members have described painful mouth sores, burning lips, and red bumps on the tongue. Some have referred to it as "burning mouth syndrome," making it painful to eat
- Burning Show Full Answer