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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Washington, DC

Now that I have my lupus diagnosis, doctors are taking a fresh look at my severe hearing loss that I experienced in January 2023.

July 19, 2024
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A MyLupusTeam Member

Thank you! I see my rheumatologist on Monday and will ask him. My kidney doc is the one who brought it up.

July 19, 2024
A MyLupusTeam Member

I have not, but it's reported in the medical literature that we are at higher risk of hearing loss. Antiphospholipid antibody syndrome is associated with this, too, so please discuss this with your doctor if you haven't yet, Jonathan.

July 19, 2024
A MyLupusTeam Member

That was my first symptom of Lupus. Total right side sudden hearing loss with no explanation! My doctor thought it was auto immune related, but my ANA was normal. 10 years later, with other symptoms developing, I was finally ANA positive with Lupus. It was difficult at first, but your body does acclimate to it. Balance issues are harder for me with it.
Hope you find some answers!

July 19, 2024

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