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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 26, 2024
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A MyLupusTeam Member

I actually miss having spit lol. Like, everything and I mean everything is dried out and uncomfortable. My mouth feels like it's pastey and I pray my nose isn't stuffed up because they say to stop being a mouth breather and it's not as bad. Hmmph...I've been told Biotene is good to use but haven't tried. For me, hard candy or constantly sipping water has been the only relief I know to do.

August 29, 2024
A MyLupusTeam Member

Yes I have!!! I know exactly what you’re talking about too. I have SLE and Sjogren’s (sp) I do take Pilocarpine for it. I do take it very sparingly as sometimes it upsets my stomach. But it really works! But I’ve also had salivary stones and a huge tumor that grew so big it was choking me and growing into my brain. You possibly may have had a very small stone that was blocking a duct. When it finally traveled down or you ate something sour, like lemon it popped out. That would have caused the rush of saliva. Now I’m no doc, by any means. But just saying it happens to me. If you have any more questions, please don’t hesitate to message me!
Pamela

August 26, 2024
MyLupusTeam

Dry mouth, also known as xerostomia, is a common symptom among people with lupus. It can be caused by Sjögren’s syndrome, which often occurs alongside lupus. Here are some key points from the knowledge base:

- Dry Mouth Causes: Sjögren’s syndrome reduces saliva production, leading to dry mouth
- Managing Dry Mouth
- Use Show Full Answer

Dry mouth, also known as xerostomia, is a common symptom among people with lupus. It can be caused by Sjögren’s syndrome, which often occurs alongside lupus. Here are some key points from the knowledge base:

- Dry Mouth Causes: Sjögren’s syndrome reduces saliva production, leading to dry mouth.
- Managing Dry Mouth:
- Use artificial saliva products like gels, gums, toothpaste, and sprays.
- Chew sugarless gum or suck on ice.
- Drink enough fluids, aiming for 15.5 cups (3.7 liters) for men and 11.5 cups (2.7 liters) for women daily.
- Avoid caffeinated beverages, alcohol, carbonated drinks, and spicy, sugary, or salty foods.
- Consult Your Doctor: If dry mouth persists or suddenly changes, it's important to discuss this with your rheumatologist to identify the cause and find appropriate treatments.

If you experience a sudden increase in saliva, it’s best to consult your healthcare provider to understand the underlying cause.

August 26, 2024
A MyLupusTeam Member

I have horribly dry eyes, nose and mouth.
And sometimes, my mouth waters a lot even though my tongue is always dry and I get sores.
I guess it’s just different for everyone.

September 30, 2024
A MyLupusTeam Member

Same. I've sjogrens as well. Annoying.

August 29, 2024

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Orlando, FL