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Good day everyone! My mouth is on 🔥!! I am not talking about oral ulcers or canker sores - I mean the entire bed of my tongue and the roof of my mouth are burning 😳!
Hoping someone out there may have some coping mechanisms, home remedies, or anything that may help tamper the flames!
I am maxed out on traditional pain killers already to existing fight chronic pain. I am eating soft foods to limit irritation, which means lots of yogurt, smoothies, pb&j sandwiches. I am drinking copious… read more
Thanks Niranjana!
Timing was good (relatively) yesterday. Already had a scheduled appointment with the Pain Clinic and saw my GP 2 hours later. They both agree it is a nerve issue (not surprising for me, I have other nerve pain going on in my body).
Pain Clinic is trying things to create a management plan for my chronic pain, one of those things was reducing my Pregabalin (Lyrica). So... we are stopping that, going back to my 250g per day. That should help interrupt the pain signals my mouth is sending to my brain.
They are also mixing a mouthwash which will include lidocaine and I believe benadryl to provide some immediate (although not very long lasting) relief.
@A MyLupusTeam Member I am no longer experiencing dry mouth since I stopped taking amitriptyline and eating does not hurt (on the contrary - having cold soft food on my tongue brings me some relief, now I just have to make sure I am not overeating 😬) but I do have trouble sleeping so I will be using it at night before I go to bed.
My day started off badly with a stress headache but things got better when I got to work and my coworkers decorated my desk for my birthday (it's on Saturday but I booked 2 days off in advance to get celebrating early)!
I hope everyone's day gets better from this moment onwards!
Cheers everyone!!
Joce, our dry mouth can cause this, and I have it at times, too. If yours is due to dry mouth and you have tried all the basic measures I mentioned in my writing, pilocarpine or cevimiline can promote saliva secretion and relieve your symptoms. In the meantime, viscous lidocaine swished around in your mouth before meals can make eating much easier, as it numbs the painful areas.
Please keep us posted!
Burning mouth syndrome (BMS) can be quite uncomfortable. Here are some tips that might help alleviate the burning sensation:
1. Avoid Spicy Foods: Spicy dishes can exacerbate mouth pain and burning sensations. Consider avoiding salsa, curry, and other spicy foods
2. Stay Hydrated: Drinking plenty of water can help keep your Show Full Answer
UPDATE
Hey guys, I am trying acupuncture treatments for my BMS and it has helped to reduce the pain. I have had some success with acupuncture on my thigh for nerve pain so I asked my acupuncturist if he could help with my mouth nerve pain and well, so far so good... 🤞
Good morning 👋!
Just a quick update and suggestion in case anyone sees this thread and is looking for some relief in the future; I have found that having a piece of gum in my mouth calms the heat. So in those moments at work yesterday, when I needed to talk for an extended period of time, having the gum made a world of difference. Of course I apologized for the gum in advance because some people find it off putting, but they were accepting of it after I told them it was necessary.
We must always advocate for ourselves!!
Have a great day 😀!
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