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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 23, 2025
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A MyLupusTeam Member

I think peripheral neuropathy may be due to several diseases that have this painful effect. Mine is crippling long term CMT CharcotMarieTooth defect (hereditary rt leg developing that involves rt ankle and worsening supination of rt ft and leg that has limited my ability to walk any short distance and no orthotic brace has helped thus far. Age, stress, and pain have hampered me considerably. You
May need a good neurologist or orthopedic or good Podiatrist to see if you have foot/ leg increasing disability. Just another of the peripheral neuropathy class.

February 26, 2025
A MyLupusTeam Member

Hi Mike,
you hit the nail on the head, especially about the heat sensation. Sometimes I feel like I have a heating pad on my back and it makes me sweat so I soak my shirt, not pleasant. I'm glad you understand, hugs to you!

February 23, 2025
MyLupusTeam

Yes, peripheral neuropathy is actually quite common in people with lupus. It occurs when lupus causes your immune system to damage nerves outside of your brain and spinal cord. These damaged nerves can cause varying sensations including numbness, tingling, pain, or burning feelings - particularly in the hands and feet.

A Show Full Answer

Yes, peripheral neuropathy is actually quite common in people with lupus. It occurs when lupus causes your immune system to damage nerves outside of your brain and spinal cord. These damaged nerves can cause varying sensations including numbness, tingling, pain, or burning feelings - particularly in the hands and feet.

A MyLupusTeam member shared their experience of getting diagnosed through a nerve conduction study before being referred to a neurologist. Common triggers that can cause or worsen peripheral neuropathy symptoms include:
- Cold temperatures
- Stress
- Contact with cold water or objects
- Inflammation flares

The good news is that there are treatment options available, including over-the-counter pain relievers, prescription medications, and vitamin B supplements. If you're experiencing these symptoms, it's important to discuss them with your doctor who may recommend specific tests to evaluate your nerve function.

February 23, 2025
A MyLupusTeam Member

Jonathon, good to hear from you again! I'm guessing now that I'm tingly feet and forearms and fingers from stress, a bit of a flare...so today I am taking a gentle break and am sitting in bed right now, just after watching a bubblegum fun movie, which did help me feel better. After a little while I'm going to do my yoga,then join into my online group meditation session :) Thanks for helping me realize this!

February 23, 2025
A MyLupusTeam Member

Yes. Every day. 😫. They last from anywhere from a few seconds to a minute or two, and can be quite painful. I get them in all extremities/limbs, and they move around a lot. Sometimes, it feels like I stepped on a thin needle that goes straight up through my foot. Other times, it’s more of a burning/itching sensation. And most recently, I’m getting “hot spots”, where for a few seconds to a minute, my feet, hands, or whatever is affected will start to slowly warm up as if I have a heating blanket on that body part.

So yes, I can relate. Hugs!

February 23, 2025

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