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A MyLupusTeam Member asked a question 💭
Idaho Falls, ID

I had a weird sensation last night. I was fine then all of a sudden super hot, pouring sweat. No fever, I checked. Then got chills about 30 minutes later. Happened during the night when I was sleeping, woke up drenched in sweat then chills.

March 11, 2025
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A MyLupusTeam Member

Random temperature fluctuations, or, a lack of bodily temperature control are fairly common among lupers.

Night sweats, especially. I wish I knew a method to moderate it, outside of finding a nice medium for you to set your thermometer at.

I stock plenty of very adjustable clothing. It means I have to change clothes fairly often. My shower and laundry routines are on point.

Outside of that, rest as best you can, grab a portable fan and enjoy the sensation of being at beach on a fine Saturday. You've earned it!

March 15, 2025 (edited)
MyLupusTeam

Temperature changes and excessive sweating are common symptoms experienced by people with lupus, particularly in those with SLE (systemic lupus erythematosus). The pattern you're describing - going from feeling extremely hot to having chills - is something many people with lupus experience. One moment you might feel like Show Full Answer

Temperature changes and excessive sweating are common symptoms experienced by people with lupus, particularly in those with SLE (systemic lupus erythematosus). The pattern you're describing - going from feeling extremely hot to having chills - is something many people with lupus experience. One moment you might feel like you're burning up, and the next you could be shivering cold. These temperature fluctuations can happen at any time, even during sleep, and don't always indicate a fever. They might be related to lupus disease activity - in fact, feeling really hot could be an early warning sign of an approaching lupus flare. If these episodes become frequent or are accompanied by other new symptoms, it would be wise to discuss them with your healthcare provider to ensure your lupus management plan is working effectively.

March 11, 2025
A MyLupusTeam Member

I have been having the same issue since i was in my early 30s. It really sucks when my body starts to get hot I turn bright red before I start sweating so bad my hair is drenched to the point I look like I just took a hot shower. When this happenes I get extremely irritable and kind of mean. Its crazy how many odd symptoms there are that make no sense

March 11, 2025

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