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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question πŸ’­
Bridgeport, CT
March 19, 2025
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A MyLupusTeam Member

Yes, I have had it. I now have a bionic hip (replacement). What has your doctor suggested to you?

March 19, 2025
A MyLupusTeam Member

Joann, I have had a few patients who developed this and did very well after hip replacement. Take care!😘

March 20, 2025
A MyLupusTeam Member

I was 38 when I had the initial pain and my orthopedic surgeon said that I was too young for total hip replacement. The pain returned more severely. My doctor's partner did a total hip replacement. I was doing very well. It's been almost 20 years. I get pain every now and then. Part of that is because I tend to sleep on my hip. Honestly, I am grateful to no longer feel the pain I had back in 2005 & 2007. The surgery isn't a cure all, but when you follow everything you are taught at post-op physical therapy, you will be amazed at how much better you feel. That's if you need surgery at all.

Please let me know what the ortho tells you when you go to your appointment. I will be thinking of you.πŸ’œ

March 19, 2025
A MyLupusTeam Member

No,

March 19, 2025
MyLupusTeam

Yes, many people with lupus experience avascular necrosis (AVN) of the hip. In fact, between 0.8 percent and 33 percent of people with lupus develop symptomatic AVN. This condition occurs when bone tissue doesn't get enough blood flow, causing the bone to die.

Common symptoms include joint pain during weight-bearing Show Full Answer

Yes, many people with lupus experience avascular necrosis (AVN) of the hip. In fact, between 0.8 percent and 33 percent of people with lupus develop symptomatic AVN. This condition occurs when bone tissue doesn't get enough blood flow, causing the bone to die.

Common symptoms include joint pain during weight-bearing activities, stiffness, muscle spasms, and limited joint movement. One MyLupusTeam member described it as feeling like their hips were "being crushed at times." Treatment options vary depending on the stage of AVN. Early stages may be managed with pain relievers and physical therapy, while advanced cases might require surgery. Long-term use of corticosteroids, which are commonly prescribed for lupus, can increase the risk of developing AVN. The condition appears to occur more frequently in people with active lupus.

If you're experiencing hip pain or limited mobility, it's important to discuss these symptoms with your healthcare provider to prevent further complications and determine the best treatment approach.

March 19, 2025

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