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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
March 23, 2025
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A MyLupusTeam Member

Late 20s and the age of 52. I was in my late twenties when I was first diagnosed with lupus. I was tested during a hospital stay - I had epilepsy at the time and I happened to bring up my inflamed fingers while being treated for the seizures. I took Cellcept for about 3 years after my lupus diagnosis, but when I'd stopped taking Dilantin and Depakote for my seizures (they became ineffective), I noticed that I didn't have inflamed fingers anymore. My then rheumatologist determined that I had drug induced lupus. Fast forward to 2024, I moved out of state and before I could even find a PCP, my joints started hurting. But still, it was mild. I got tested during a gynecological exam where, once again, I casually brought up my joint pain. Thankfully, the doctors did an ANA titer test....while I just thought it was old age arthritis. It was lupus. I was 52. Unfortunately, I'm experiencing all the weird pain that and complications that lupus can bring on....kidney involvement, gi tract and maybe liver, my lungs.... I want to know if the onset of menopause caused lupus to reappear.

March 26, 2025
A MyLupusTeam Member

Diagnosed at 49 but I believe I have had it since my early 20's... no one took my symptoms etc seriously.

March 26, 2025
A MyLupusTeam Member

I was diagnosed, finally, at 75. I’m 79 now. But the symptoms had been there long before then. Just kept being treated for HBP and pain.

March 26, 2025
A MyLupusTeam Member

I was 54 years old when I was diagnosed with lupus

March 24, 2025
A MyLupusTeam Member

59 yrs old, but SS wouldn't give me my disability until 2010.

March 31, 2025

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