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An update: It turns out the most severe aspects of the myopathy were caused by an unusual reaction to Omeprazole. 95% of the swelling and pain were resolved with cessation of the Omeprazole. There is still some pain, weakness and inability to improve muscle tone, which may be related to the Prednisone according to my GP, but I will have to deal with that until I can wean off of the steroid. Fingers crossed. At least I can walk again. I do maintain a minimum of time on the treadmill which seems to help but, as stated above, I am unable to build muscle tone or endurance.
Lupus is a frustrating challenge and sometimes it is difficult to determine what is caused by the disease. Perhaps the reaction to the drug itself was caused by the disease. Who knows.
Many MyLupusTeam members experience muscle weakness and leg pain as part of their lupus journey. One member shared they have such severe leg pain they can barely walk during flares. Another described experiencing horrible pressure and pain when trying to kneel.
These symptoms can be particularly frustrating, especially when Show Full Answer
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