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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Oxford, MS

I had symptoms as a teenager but wasn't diagnosed until I was 34 years old

June 16, 2025
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MyLupusTeam

Getting diagnosed with lupus takes 6 years on average after symptoms first appear. This is because lupus can mimic many other conditions, making it challenging for doctors to recognize the pattern of symptoms. In fact, 63% of people with lupus receive at least one misdiagnosis before getting their correct diagnosis. Doctors Show Full Answer

Getting diagnosed with lupus takes 6 years on average after symptoms first appear. This is because lupus can mimic many other conditions, making it challenging for doctors to recognize the pattern of symptoms. In fact, 63% of people with lupus receive at least one misdiagnosis before getting their correct diagnosis. Doctors are trained to look for specific patterns, but lupus symptoms can vary widely between individuals. Some people may have joint problems, others might have organ involvement, and some experience skin issues. Without a single definitive test for lupus, healthcare providers must piece together symptoms and test results using specific diagnostic criteria to confirm the condition. Your experience is similar to many others with lupus. One MyLupusTeam member shared that they had various undiagnosable symptoms since childhood before finally receiving their lupus diagnosis as an adult. The key is that earlier diagnosis leads to earlier treatment, so it's important to advocate for thorough testing if you suspect lupus.

June 16, 2025
A MyLupusTeam Member

Part of the reason is that a whole group of symptoms and lab findings is needed to make a definite diagnosis, Machel. Often, in our early years, we start to have a symptom or two, but the whole picture can take time. The AI answer is true, too.

June 17, 2025
A MyLupusTeam Member

very true , my doctor said tat is was because I was depress , up course I'm would go to her and no blood work was done and when I would live I was in a more depress state . Finally I went to a new doctor and thin an hour he told me if he was right I had Lupus and Fibromyalgia < they did blood work and a lot of pocking on my body and a week later I was giving the news and he was correct .

June 17, 2025
A MyLupusTeam Member

Unfortunately, this is very common which I don't agree with. Many doctors want to be able to neatly check off their list and if it doesn't fit you, they don't want to help. It took me many tries to get a good rheumatologist. You need a whole team of specialists to treat Lupus because it's a systemic disease.

July 9, 2025
A MyLupusTeam Member

It took them years to diagnose mine...

July 8, 2025

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