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There are different factors. Lupus mimics other diseases like MS, often leading to misdiagnosis. As AI mentioned, there are several lab tests. The AVISE test is expensive, but worth requesting if it hasn't been ordered. Also, there is no standard protocol for diagnosis except the list of 11 criteria for lupus. Out of all the rheumatologists I have had, only one went through the list with me at every visit. Each doctor has their own idea of what lupus looks like on a first visit. I just happened to meet a knowledgeable dermatologist who suspected SLE and that helped me in some ways. It is best to seek a rheumatologist who has a special interest in lupus. This means that they may have specifically studied under a lupus specialist or researcher and stays up-to-date on current research and medications.
I am including a list of the 11 criteria for lupus. Some are the telltale signs for our flares as well. And information about the AVISE test.
What Are the 11 Criteria for Lupus? https://share.google/DpInfcFrV0zWLpXUm
AVISE Lupus - Advanced Testing for Lupus Diagnosis https://share.google/CBUPxwxKec20sf5WU
Getting diagnosed with lupus takes about 6 years on average from when symptoms first appear. This happens because lupus can be tricky to identify - its symptoms often look like other conditions, making it challenging for doctors to recognize the pattern. This is especially true since symptoms can vary significantly from Show Full Answer
Lack of education
Thanks for the information!
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