Lupus is often called the Great Imitator because the symptoms of lupus are also common to many other conditions, especially those that are autoimmune. To confound the diagnostic process even more, lupus often comes in overlap with other conditions. The diagnosis of lupus is a differential diagnosis which means a process of elimination. There are no definitive tests although Exagen laboratories has the best one out there, AVISE.

A diagnosis of lupus is based on medical history, symptoms, a variety of tests and process of elimination. Both patients and doctors are easily frustrated by this process. In fact, many people take years to arrive at a proper diagnosis.

All that said, from my personal experience and experience working with patients, if you walk into the rheumatology exam room having diagnosed yourself, chances are the rheumatologist will develop sudden deafness! Many of them are not pleased to be competing for your faith with Dr. Google!

What can you do? Make a list of symptoms. Be very clear. Here are things to consider,
1. What is the symptom?
2. When did the symptom start?
3. How often do you have this symptom?
4. What makes the symptom better or worse?
5. To what degree does the symptom interfere with your quality of life?
6. Describe the symptom clearly. If you have pain, is it sharp, stabbing, throbbing, dull, hot?
7. Before your appointment, go back over the list. Edit the list to be as brief as you can. Your time with the doctor is limited, usually by insurance companies.
8. Bring a copy of the list for you and one for your doctor. When you feel vulnerable sitting in the exam room or on the table, forgetting things is easy.

Wishing you all the best. Linda