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Double vision determined to be trochlear nerve palsy which they said it was a cause of active lupus, and not medication. I have anti phosphilippid syndrome and blood transfusion from that in the past due to internal bleeding with an INR of 13 . But this recent transfusion it was first that I had a low INR and 1st time suddenly having significantly low platelet count. Had I not been told to go to the hospital due to the double vision, I would not have known I needed a transfusion. In the past It… read more
TR, I'm sorry you're struggling so, and given your complicated neurologic symptoms, I wonder if you have access to a university medical center to consult with a rheumatologist and neurologist there, if you haven't already.
I hope you're taking excellent care of yourself and getting lots of rest, UV protection, a healthy diet, and reducing stress levels. Do you have good family support? Sending you hugs and blessings.😘💜
Thank you so much!♥️
FYI, a neurophthalmologist can be helpful if your double vision is persisting, TR.
Your symptoms appear to be related to neuropsychiatric lupus (NPSLE), which affects the brain and nervous system. This form of lupus affects about two-thirds of people with SLE and can cause various neurological symptoms. The double vision and hearing changes you're experiencing are consistent with nervous system Show Full Answer
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