Definitely get a second opinion.
My first rheumatologist was a quack. Be pro active. I wasn’t and suffer for many years. Hope you can find a good dr..
August 6, 2025
It took me 8 years and 3 different Rheumatologists to get a try diagnosis of what was wrong with me
August 7, 2025
Getting different diagnoses can feel overwhelming and confusing. The lupus diagnosis process is complex and requires meeting specific criteria beyond just a positive ANA test. While ANA tests are important, doctors need to see multiple symptoms and positive test results to confirm a lupus diagnosis.
A diagnosis typically Show Full Answer
Getting different diagnoses can feel overwhelming and confusing. The lupus diagnosis process is complex and requires meeting specific criteria beyond just a positive ANA test. While ANA tests are important, doctors need to see multiple symptoms and positive test results to confirm a lupus diagnosis.
A diagnosis typically requires:
• Multiple blood tests showing specific antibodies
• Evidence of organ system involvement
• Symptoms from certain required categories
• A total symptom score of 10 or more points Your rheumatologist may be doing their due diligence by running additional tests to get a complete picture of your health. These might include:
• Additional autoantibody testing
• Complete blood count
• Complement level tests
• Kidney and liver function tests
• Inflammation markers
• Urine analysis
Stay in communication with your healthcare team about your symptoms and concerns. The path to diagnosis can take time, but your symptoms will be treated appropriately regardless of the final diagnosis.
August 6, 2025
I’m sorry you had to deal with that 💔
August 11, 2025
Thank you, Brian. I appreciate that. I have an appointment in January with a rheumatologist that specializes in lupus. I think I may have better luck with her.
August 6, 2025