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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 8, 2025
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Answer Summary

Members shared helpful tips for managing Sjogren's Syndrome, focusing on dry eyes and dry mouth as the main symptoms, along with its... Read more

Members shared helpful tips for managing Sjogren's Syndrome, focusing on dry eyes and dry mouth as the main symptoms, along with its connection to lupus and other autoimmune conditions. Several members recommended products like Refresh Optive eye drops, Biotene rinse, XyliMelts, xylitol tabs, and medicated fluoride toothpaste, while one member stressed being very careful with dental care after experiencing tooth loss. A recurring theme was the importance of self-advocacy, tracking symptoms, checking labs for anti-Ro and anti-La antibodies, and leaning on the community for support.

A MyLupusTeam Member

@BrendaMcneal2--There is a genetic predisposition to lupus, rheumatoid arthritis, and other autoimmune diseases, Brenda. Then, some environmental trigger, which is believed to be a virus or other infection, activates our immune system and antibodies against the body are produced. Pesticides and other environmental pollutants may play a role in triggering these diseases, too.

August 12, 2025
A MyLupusTeam Member

Sjogrens not only attacks our eyes and mouth, but our whole body can be involved -it's a disease with multi-system involvement, dry skin, arthritis/joint pain, gastrointestinal problems, headaches, neurological deficits and more. Breastfeeding with Raynauds and Sjogrens was extremely difficult

August 11, 2025
A MyLupusTeam Member

I think the best advice I can give is be extremely meticulous with dental care. I lost 4 or 5 teeth before it was controlled.

August 11, 2025
A MyLupusTeam Member

Sorry I am late getting on here. For eye drops, my eye doctor recommended Refresh Optive as it is a lubricated drop and should give longer lasting relief. At night I use XyliMelts (stick-on-melts). One side of this sticks to the gum and dissolves over a period of time. I am able to go to sleep without being afraid of choking on it. I order this from Amazon. All you can do with Sjogren's is control it. I've not heard of anything that changes it. Wear sunglasses when you go outside. I had quite a bit of problem when our air here in KC was full of smoke from Canada. Wind is not our friend either even that produced by our fans.

August 9, 2025
A MyLupusTeam Member

I would like to know i could all of these immune diseases affect so many, from generations of family. What could had happened to start allr what to create so many immune diseases. I just continue to hear all these people in so much pain and so many different types of people young and old, all races. What could had started all this terrible diseases. That's my question

August 12, 2025

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